Support Groups

The heart of our organization is our support groups.  Every month two support groups  meet in Maryland and two meet in Virginia.  We meet at restaurants to discuss topics related to spina bifida.

Each support group meeting has a host, and we talk about whatever issues the people who attend want to talk about. Topic discussions in the past have included  mobility; tethered cord; shunts; wound care; bowel and bladder control; braces; wheelchairs; building accessibility; learning disabilities; disabled sports programs; preschool programs for children with disabilities; dealing with pain; and seizures, and more.  All are welcome.  The meals are paid for by the association and are free for those who attend.

  • Waldorf, Maryland. Group meets the third Saturday of the Month at Bob Evans – 2355 Crain Hwy (Rt. 301, near the Sam’s Club) from 10:00 am to 12:00 noon. Please call Jill Hill at (703) 455-5223 or for more information.
  • Colesville, Maryland.  Group meets the third Sunday of the month at Ledo Pizza at 13444 New Hampshire Avenue (shopping center north of Randolph Road) from 5:00 to 7:00 pm. Please contact Georganne Friedrich at (301) 251-5953 or for more information.
  • Woodbridge, Virginia. Group meets the third Wednesday of the month at the Bob Evans at 14490 Smoketown Road (near Potomac Mills Mall) from 9:30 to 11:30 am. Please call Jill Hill at (703) 455-5223 or for more information.
  • Springfield, Virginia. Group meets the third Thursday of the month at the Bob Evans restaurant at 6310 August Drive (Near intersection of Old Keene Mill Rd (Rt 644) and I-95) from 7:00 to 9:00 pm.